Ventilator and my Caregivers
In March 2022 I had to go to emergency room because I could not breathe and the doctor performed a tracheostomy. Three years and six months after I was diagnosed. I've been back to icu two times since for pneumonia because I have been so immobile. I've been in bed since my tracheostomy because I need to get my chair fitted to handle the additional equipment. Since my surgery, it has been really hard on me and my caregivers. The Ventilator I'm on sounds alarms, sometimes for no reason, so you can imagine how frustrating that is for my caregivers. I've been in respiratory
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